Social Acceptance For Leprosy Infants: Case Study of Leprosy Village, in Balang Baru Village in Makassar City

doi:10.47540/ijqr.v3i2.1153

DOI:

https://doi.org/10.47540/ijqr.v3i2.1153

Keywords:

Leprosy, Social Acceptance, Stigma

Abstract

The study delves into societal perceptions and interactions with leprosy-affected individuals in Balang Baru's Leprosy Village, addressing the prevalent negative stigma that shapes their social relationships. While striving for a more inclusive social space, affected individuals often experience alienation, limiting their interactions. Utilizing qualitative methods, including observation, interviews, and documentation, the research focuses on individuals impacted by leprosy, former patients, and the local community. Findings reveal a contrasting dynamic: within Balang Baru, residents view affected individuals as ordinary, fostering acceptance due to shared experiences. However, external societal acceptance remains scarce, hindering their engagement beyond the community. This study underscores the disparities in perception and interaction between internal and external environments. The challenge ahead lies in integrating affected individuals into broader society, necessitating bridging the gap between localized acceptance and the broader societal stigma. Ultimately, the research emphasizes the need to facilitate the inclusion of leprosy-affected individuals in the wider society beyond their immediate community.

References

Aloudat, A., Michael, K., Chen, X., & Al-Debei, M. M. (2014). Social acceptance of location-based mobile government services for emergency management. Telematics and Informatics, 31(1), 153–171.

Anthony, D. B., Holmes, J. G. and Wood, J. V. (2007). Social acceptance and self-esteem: tuning the sociometer to interpersonal value. Journal of personality and social psychology, 92(6), 1024.

Arachchi, M. A. J. D. M., Kumari, A. G. D., Wickramasinghe, R., Kuruppu, N. R., & Pramuditha Madhavi, A. V. (2017). Stigmatization in Leprosy: A descriptive study from patients’ perspective in Sri Lanka. Scientific Research Journal (SCIRJ), 5(9), 10–13.

Arole, S., Premkumar, R., Arole, R., Maury, M., & Saunderson, P. (2002). Social stigma: A comparative qualitative study of integrated and vertical care approaches to leprosy. Leprosy Review, 73(2), 186–196.

Berk, L. E. (2022). Exploring lifespan development. SAGE Publications.

Brown, W. (2006). Can social marketing approaches change community attitudes towards leprosy?, Leprosy review, 77(2), 89–98.

Cooley, C. H. (1983). Social organization: A study of the larger mind. New Brunswick. NJ: Transaction Books.

Creswell, J. W., & Poth, C. N. (2016). Qualitative inquiry and research design: Choosing among five approaches. Sage publications.

DeWall, C. N. and Bushman, B. J. (2011). Social acceptance and rejection: The sweet and the bitter, Current Directions in Psychological Science, 20(4), 256–260.

Dinos, S., Stevens, S., Serfaty, M., Weich, S., & King, M. (2004). Stigma: the feelings and experiences of 46 people with mental illness: qualitative study. The British Journal of Psychiatry, 184(2), 176-181.

Ebenso, B., Fashona, A., Ayuba, M., Idah, M., Adeyemi, G., & S-Fada, S. (2007). Impact of socio-economic rehabilitation on leprosy stigma in northern Nigeria: Findings of a retrospective study. Asia Pacific Disability Rehabilitation Journal, 18(2), 98–119.

Ebenso, B., Newell, J., Emmel, N., Adeyemi, G., & Ola, B. (2019). Changing stigmatisation of leprosy: An exploratory, qualitative life course study in Western Nigeria. BMJ Global Health, 4(2), e001250.

Eyanoer, P. C. (2018) ‘Social acceptance and quality of life of leprosy patient’, in IOP conference series: earth and environmental science. IOP Publishing, 12100.

Gussow, Z. (1964). Behavioral research in chronic disease: A study of leprosy. Journal of Chronic Diseases, 17(2), 179–189.

Gussow, Z. (2021) Leprosy, racism, and public health: social policy in chronic disease control. Routledge.

Hurlock, E. B. (1997). Developmental Psychology: A Lifespan Approach.

Joseph, G. A. and Rao, P. S. (1999). Impact of leprosy on the quality of life. Bulletin of the World Health Organization, 77(6), 515.

Kaehler, N., Adhikar, B., Raut, S., Marahatta, S. B., & Chapman, R. S. (2015). Perceived stigma towards leprosy among community members living close to Nonsomboon leprosy colony in Thailand. PLoS ONE, 10(6), e0129086

Kalisch, P. A. (1972). The Strange Case of John Early: A Study of the Stigma of Leprosy. International Journal of Leprosy, 40(3), 291–305.

Kaur, H. and Van Brakel, W. (2002). Dehabilitation of leprosy-affected people—a study on leprosy-affected beggars. Leprosy review, 73(4), 346–355.

Kopparty, S. N. M. (1998). Acceptance in the family: a study of deformed and non‐deformed leprosy patients in Tamil Nadu, India. International Journal of Sociology and Social Policy, 18(7/8), 83-101.

Leano, H. A. de M., Araújo, K. M. da F. A., Bueno, I. de C., Niitsuma, E. N. A., & Lana, F. C. F. (2019). Socioeconomic factors related to leprosy: an integrative literature review. Revista brasileira de enfermagem, (72), 1405–1415.

Leary, M. R., Cottrell, C. A. and Phillips, M. (2001). Deconfounding the effects of dominance and social acceptance on self-esteem. Journal of personality and social psychology, 81(5), 898.

Lenka, D. and Mahapatra, A. (2016). Role of Reconstructive Surgery (RCS) in Improving the Quality of Life of Leprosy Afflicted Persons. Indian Journal of Leprosy, 88(1), 7–12.

Lesshafft, H., Heukelbach, J., Barbosa, J. C., Rieckmann, N., Liesenfeld, O., & Feldmeier, H. (2010). Perceived social restriction in leprosy-affected inhabitants of a former leprosy colony in northeast Brazil. Leprosy Review, 81(1), 69–78.

Lusli, M., Zweekhorst, M., Miranda-Galarza, B., Peters, R. M., Cummings, S., Seda, F. S., & Bunders, J. F. (2015). Dealing with stigma: experiences of persons affected by disabilities and leprosy. BioMed research international, 2015. 261329.

Martos-Casado, G., Vives-Cases, C., & Gil-González, D. (2022). Community intervention programmes with people affected by leprosy: Listening to the voice of professionals. PLoS Neglected Tropical Diseases, 16(3), e0010335.

Odom, S. L., Zercher, C., Li, S., Marquart, J. M., Sandall, S., & Brown, W. H. (2006). Social acceptance and rejection of preschool children with disabilities: A mixed-method analysis. Journal of Educational Psychology, 98(4), 807–823.

Ooi, W. W., & Srinivasan, J. (2004). Leprosy and the peripheral nervous system: basic and clinical aspects. Muscle & nerve, 30(4), 393-409.

Palande, D. D. and Virmond, M. (2002). Social rehabilitation and surgery in leprosy. Hansen Int, (27), 99–104.

Parker, J. G. and Asher, S. R. (1993). Friendship and friendship quality in middle childhood: Links with peer group acceptance and feelings of loneliness and social dissatisfaction. Developmental psychology, 29(4), 611.

Van de Poel, I. (2016). A Coherentist View on the Relation Between Social Acceptance and Moral Acceptability of Technology. In Philosophy of Engineering and Technology (Vol. 23, pp. 177–193). Springer Nature.

Rafferty, J. (2005). Curing the stigma of leprosy. Leprosy review, 76(2), 119–126.

Rai, N., & Thapa, B. (2015). A study on purposive sampling method in research. Kathmandu: Kathmandu School of Law, 5.

Ramoni, R. B., Mulvihill, J. J., Adams, D. R., Allard, P., Ashley, E. A., Bernstein, J. A., ... & Stong, N. (2017). The undiagnosed diseases network: accelerating discovery about health and disease. The American Journal of Human Genetics, 100(2), 185-192.

Raphael, B.M., Cumber, S.N., Niyonzima, V., Ndenkeh, J.J.N., Kanjo-Cumber, R.Y. (2017). The Lived Experience of Patients with Leprosy at Kagando Hospital, Uganda. Public Health International, 2(2), 67-74.

Roberts, C. A. (2020). Leprosy: Past and present. University Press of Florida.

Sardana, K. and Khurana, A. (2020). Leprosy stigma & the relevance of emergent therapeutic options, The Indian Journal of Medical Research, 151(1), 1.

Scott, J. (2000). The psychosocial needs of leprosy patients. Leprosy review, 71(4), 486–491.

Sermrittirong, S., & Van Brakel, W. H. (2014). Stigma in leprosy: concepts, causes and determinants. Leprosy review, 85(1), 36-47.

Silva, C. A., Albuquerque, V. L. and Antunes, M. F. (2014). Leprosy as a neglected disease and its stigma in the northeast of Brazil, Indian J Lepr, 86(2), 53–59.

Slaughter, V., Dennis, M. J. and Pritchard, M. (2002). Theory of mind and peer acceptance in preschool children. British Journal of Developmental Psychology, 20(4), 545–564.

Soomro, F. R., Pathan, G. M., Bhatti, N. S., & Hussain, J. (2013). Awareness of leprosy - knowledge and practices among general practitioners in leprosy endemic areas of larkana region, sindh, pakistan. Journal of Pakistan Association of Dermatologists, 23(3), 300–303.

Stake, R. E. (1995) The art of case study research. Sage.

Tamrin, S. Irwansyah, I., Najamuddin, Amandaria, R., Arisnawawi. (2022). Lifestyle Resistance of the Bajo Tribe in Fcing of Stigma. In Proceedings of International Conference Sociology, University of Mataram. Program Studi Sosiologi, 228–241.

Thilakavathi, S., Manickam, P. and Mehendale, S. M. (2012). Awareness, social acceptance and community views on leprosy and its relevance for leprosy control, Tamil Nadu. Indian J Lepr, 84(3), 233–240.

Ulrich, M., Zulueta, A. M., Cáceres-Dittmar, G., Sampson, C., Pinardi, M. E., Rada, E. M., & Aranzazu, N. (1993). Leprosy in women: Characteristics and repercussions. Social Science and Medicine, 37(4), 445–456.

Vanhalst, J., Luyckx, K., Scholte, R. H. J., Engels, R. C. M. E., & Goossens, L. (2013). Low self-esteem as a risk factor for loneliness in adolescence: Perceived - But not actual - Social acceptance as an underlying mechanism. Journal of Abnormal Child Psychology, 41(7), 1067–1081.

Varkevisser, C. M., Lever, P., Alubo, O., Burathoki, K., Idawani, C., Moreira, T. Patrobas, P., Yulizar, M. (2009). Gender and leprosy: Case studies in Indonesia, Nigeria, Nepal and Brazil. Leprosy Review, 80(1), 65–76.

Volinn, I. J. (1983). Health professionals as stigmatizers and destigmatizers of diseases: Alcoholism and leprosy as examples. Social Science & Medicine, 17(7), 385–393.

Wentzel, K. R., Jablansky, S. and Scalise, N. R. (2021). Peer social acceptance and academic achievement: A meta-analytic study. Journal of Educational Psychology, 113(1), 157.

Wolsink, M. (2018). Social acceptance revisited: gaps, questionable trends, and an auspicious perspective. Energy research & social science, 46, 287–295.

Wolsink, M. (2019). Social acceptance, lost objects, and obsession with the “public”—The pressing need for enhanced conceptual and methodological rigor. Energy Research & Social Science, 48, 269–276.

World Health Organization. (2006). Report of the Global Forum on Elimination of Leprosy as a Public Health Problem, Indian journal of leprosy. Geneva, Swtzerland. 26 May, 2006 (No. WHO/CDS/NTD/2006.4). World Health Organization.

Yin, R. K. (2003). Designing case studies. Qualitative research methods, 5(14), 359-386.